The Dysautonomia Project

Understanding Autonomic Nervous System Disorders for Physicians and Patients

Author: Msm Kelly Freeman,MD Phd Goldstein,MD Charles R. Thmpson

Publisher: Bardolf

ISBN: 9781938842245

Category: Medical

Page: 224

View: 2896

"The Dysautonomia Project" is a much needed tool for physicians, patients, or caregivers looking to arm themselves with the power of knowledge. It combines current publications from leaders in the field of autonomic disorders with explanations for doctors and patients about the signs and symptoms, which will aid in reducing the six-year lead time to diagnosis.

Clinical Autonomic Dysfunction

Measurement, Indications, Therapies, and Outcomes

Author: Joseph Colombo,Rohit Arora,Nicholas L. DePace,Charlotte Ball

Publisher: Springer

ISBN: 3319073710

Category: Medical

Page: 452

View: 2104

This book presents the concepts underlying the measurement of parasympathetic and sympathetic (P&S) activity in the autonomic nervous system and the application of these measurements in the development of therapeutic guidelines for treating dysfunctions in these processes. It provides an overview of the anatomy, physiology, and biochemistry of the autonomic nervous system; details general clinical applications of P&S monitoring that are independent of specialty or disease; presents the pathophysiology of P&S dysfunction in specific disorders, expected test results, therapeutic options, and expected outcomes; and includes case studies and longitudinal studies that demonstrate the major concepts for the common diseases for which P&S monitoring is recommended. Clinical Autonomic Dysfunction enables clinicians to improve patient outcomes by identifying and treating clinical problems related to autonomic nervous system disorders.

Clinical Autonomic Disorders

Author: Phillip A. Low,Eduardo E. Benarroch

Publisher: IMO Publishing

ISBN: 9780781773812

Category: Medical

Page: 780

View: 4691

Designed to be the definitive resource for both practicing and academic neurologists, as well as clinicians in such areas as cardiology and GI, where autonomic disorders are more prevalent. The user-friendly presentation offers clear information on the neuroscientific basis for testing, normal values, and interpretation of tests. New features to this edition include furthur detail about the role of the central nervous system in autonomic disorders, increased attention on clinical applications, and state-of-the-art laboratory procedures and equipment.

Adrenaline and the Inner World

An Introduction to Scientific Integrative Medicine

Author: David S. Goldstein

Publisher: JHU Press

ISBN: 9780801882883

Category: Medical

Page: 309

View: 307

This accessible work is the first in more than seventy-five years to discuss the many roles of adrenaline in regulating the "inner world" of the body. David S. Goldstein, an international authority and award-winning teacher, introduces new concepts concerning the nature of stress and distress across the body's regulatory systems. Discussing how the body's stress systems are coordinated, and how stress, by means of adrenaline, may affect the development, manifestations, and outcomes of chronic diseases, Goldstein challenges researchers and clinicians to use scientific integrative medicine to develop new ways to treat, prevent, and palliate disease. Goldstein explains why a former attorney general with Parkinson disease has a tendency to faint, why young astronauts in excellent physical shape cannot stand up when reexposed to Earth's gravity, why professional football players can collapse and die of heat shock during summer training camp, and why baseball players spit so much. Adrenaline and the Inner World is designed to supplement academic coursework in psychology, psychiatry, endocrinology, cardiology, complementary and alternative medicine, physiology, and biochemistry. It includes an extensive glossary.

God Needs Me

Living with Dysautonomia

Author: Lynn Fox Adams

Publisher: Tate Publishing

ISBN: 1607995921

Category: Biography & Autobiography

Page: 232

View: 7995

Does God really "need" anyone? Lynn Fox Adams answers that question with a resounding yes. As a sufferer of the often-misdiagnosed and misunderstood disease dysautonomia, Lynn has spent her life mostly bedridden and homebound. Yet this has not stopped her from sharing and spreading the message of Jesus Christ throughout the world. "God Needs Me: Living with Dysautonomia" is Lynn's personal story of hope, encouragement, and affirmation that yes, God truly can use "anyone" in his kingdom. Sufferers of dysautonomia or other chronic conditions, as well as friends and family members of those who suffer, will cherish this first-of-its-kind book and find hope, encouragement, and even solutions therein as they discover that a disease, no matter how debilitating, does not have to control one's spiritual existence.

Primer on the Autonomic Nervous System

Author: David Robertson,Italo Biaggioni

Publisher: Academic Press

ISBN: 0123865255

Category: Medical

Page: 703

View: 7877

The Primer on the Autonomic Nervous System presents, in a readable and accessible format, key information about how the autonomic nervous system controls the body, particularly in response to stress. It represents the largest collection of world-wide autonomic nervous system authorities ever assembled in one book. It is especially suitable for students, scientists and physicians seeking key information about all aspects of autonomic physiology and pathology in one convenient source. Providing up-to-date knowledge about basic and clinical autonomic neuroscience in a format designed to make learning easy and fun, this book is a must-have for any neuroscientist's bookshelf! Greatly amplified and updated from previous edition including the latest developments in the field of autonomic cardiovascular regulation and neuroscience Provides key information about all aspects of autonomic physiology and pathology Discusses stress and how its effects on the body are mediated Compiles contributions by over 140 experts on the autonomic nervous system

The Mitral Valve Prolapse Syndrome/Dysautonomia Survival Guide

Author: James F. Durante,Cheryl L. Durante,John G. Furiasse

Publisher: New Harbinger Publications Incorporated

ISBN: 9781572243033

Category: Health & Fitness

Page: 172

View: 2208

The cofounders of the Mitral Valve Prolapse Society team up with a cardiologist to help readers who suffer from this chronic and incurable illness manage symptoms and maintain healthy and stable lives.

Never Bet Against Occam

Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity

Author: Lawrence B. Afrin, M.d.

Publisher: N.A

ISBN: 9781530631049


Page: 470

View: 6426

In 2008 Dr. Afrin started coming to understand that a newly recognized type of mast cell disease, now called mast cell activation syndrome (MCAS), was the underlying diagnosis in many patients he was seeing who were each suffering large assortments - quite different from one patient to the next - of chronic multisystem inflammatory illnesses of unclear cause. Dr. Afrin soon gained experience that MCAS is far more prevalent than the only mast cell disease previously known to medicine (the rare disease of mastocytosis) and that most MCAS patients, once accurately diagnosed, can eventually find significantly helpful medications targeted at the disease. The frequency and magnitude of the improvements Dr. Afrin has seen - even the relief that comes from finally having a unifying diagnosis other than "psychosomatism" - have spurred him to focus in this area, not only tending to the needs of his patients but also pursuing research to advance our understanding of the disease and helping to educate other professionals who in turn can help even more of the many people who have long been suffering not only the symptoms of the disease but also the natural concern of not understanding why one would be so "unlucky" to have acquired so many medical problems. As it turns out, such patients are not so unlucky and truly have just one root issue (and a very common one at that), which has the biological capability to develop, directly or indirectly, into most or all of their previously diagnosed problems. There is a great deal yet to learn about this, but even with just the present very limited understanding, the opportunity to diagnose and help patients with MCAS seems to be enormous and Dr. Afrin felt a description of the disease, written for the general public, might help lead some MCAS patients on a journey to diagnosis and improvement sooner rather than later. Dr. Afrin hopes this book will help people who might have, or do have, MCAS. A portion of the proceeds of purchases of this book will go to support research and education in this area.

Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition

Author: Derrick Lonsdale,Chandler Marrs

Publisher: Academic Press

ISBN: 0128103884

Category: Health & Fitness

Page: 356

View: 5853

Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition explores thiamine and how its deficiency affects the functions of the brainstem and autonomic nervous system by way of metabolic changes at the level of the mitochondria. Thiamine deficiency derails mitochondrial oxidative metabolism and gives rise to the classic disease of beriberi that, in its early stages, can be considered the prototype for a set of disorders that we now recognize as dysautonomia. This book represents the life’s work of the senior author, Dr. Derrick Lonsdale, and a recent collaboration with his co-author Dr. Chandler Marrs. Presents clinical experience and animal research that have answered questions about thiamine chemistry Demonstrates that the consumption of empty calories can result in clinical effects that lead to misdiagnosis Addresses the biochemical changes induced by vitamin deficiency, particularly that of thiamine

Hypermobility Syndrome

Recognition and Management for Physiotherapists

Author: Rosemary Keer,Rodney Grahame

Publisher: Butterworth-Heinemann

ISBN: 9780750653909

Category: Medical

Page: 176

View: 4782

Discusses the implications of generalised joint hypermobility and helps the reader to recognise and identify when the hypermobility syndrome is present. It goes on to describe in detail the assessment and management of the syndrome from children through to adults, and it includes sections on relevant ergonomics, rehabilitation and fitness. Also included is information on where the hypermobility syndrome fits in with other connective tissue disorders.

Joint Hypermobility Handbook

A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

Author: Brad T Tinkle

Publisher: Wiley-Blackwell

ISBN: 9780982577158

Category: Medical

Page: 260

View: 6640

As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: ..".provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... ..".a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." ..".thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." ..".a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: Genetics Medical Genetics Orthopedics Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.

Issues and Management of Joint Hypermobility

A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

Author: Brad T. Tinkle

Publisher: Left Paw Press, LLC

ISBN: 9780981836003

Category: Medical

Page: 144

View: 682

A leading expert in connective tissue disorders presents a primer to encourage dialogue between patients and their health care providers in order to create an individualized treatment plan addressing the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobile Syndrome.

Surviving and Thriving with an Invisible Chronic Illness

How to Stay Sane and Live One Step Ahead of Your Symptoms

Author: Ilana Jacqueline

Publisher: New Harbinger Publications

ISBN: 1626256012

Category: Health & Fitness

Page: 208

View: 2225

“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

You’Re Still Sick?

Author: Julie Jacobsen Deck

Publisher: iUniverse

ISBN: 149179187X

Category: Fiction

Page: 240

View: 8630

A young woman with chronic illness takes matters into her own hands in this debut novel the story does an excellent job of portraying the relentless difficulties of suffering from hard-to-treat, chronic illnesses a sometimes-exhausting but realistic portrait of life under physical duress. Kirkus Reviews While writing in her journal, Adrea Drea Ragnason visualizes a creative way to deal with the increasing complications in her life even though it wont provide immediate results. In the meantime, she lives her life as simply as possible. Drea enjoys spending time with her aunt and young niece, but doesnt enjoy the time spent at doctors offices; yet she does it so she will no longer be asked the question, Youre still sick? With her aunts help, Drea finds an apartment that includes an empathetic landlord. The new space gives her much needed peace and quiet, plus the freedom to easily monitor her hopeful plan of making her doctors walk a mile in her shoes. Helene Gundersen is a psychologist with a new practice. The daughter of a doctor, she isnt surprised that many of her clients are doctors, yet she is startled they share similar symptoms. Her comments and suggestions nudge them toward research. Meanwhile, she attempts to remain detached as she helps a chronically ill client; however, Helene is hopeful when learning about POTS, a condition caused by a malfunctioning autonomic nervous system, and one of several conditions listed under the broad term of dysautonomia.

Autonomic Nervous System

Basic and Clinical Aspects

Author: Daniel Pedro Cardinali

Publisher: Springer

ISBN: 3319575716

Category: Medical

Page: 385

View: 1634

A traditional view of the Autonomic Nervous System (ANS) considers only its peripheral part: the sympathetic and parasympathetic systems. However, this view misses to consider the most important ANS function: the maintenance of homeostasis. This term is used today to define not only the strategies that allow the body proper response to changes in the environment (reactive homeostasis), but also temporal mechanisms that allow the body to predict the most likely timing of environmental stimuli (predictive homeostasis based on biological rhythms). This book discusses the ANS from both an enlarged and a timed perspective. First, it presents how the organization of the ANS is hierarchical into different levels. Following that, the book discusses how the ANS changes functionally in the three-body configurations (wakefulness, slow sleep, rapid eye movement sleep) found in a 24-hour cycle. Finally, the most important clinical implications of this enlarged and timed vision of ANS will be discussed. Autonomic Nervous System – Basic and Clinical Aspects is a comprehensive text intended for medical students and health professionals who are interested in a deeper approach to this important part of the nervous system. It provides a detailed and complete understanding of the neuroscience behind the ANS, allowing a proper clinical applicability of this knowledge.

Pots Syndrome

What It Really Is & Why It Happens

Author: Patrick Ussher

Publisher: Createspace Independent Publishing Platform

ISBN: 9781545299395


Page: 158

View: 866

Postural Orthostatic Tachycardia Syndrome (POTS) is currently defined as a 'syndrome', a collection of symptoms for which the root cause has not yet been identified. This book aims to rectify this by arguing the case for POTS being considered a form of neurological injury to the limbic system following an antecedent trauma, such as a viral illness, pregnancy, surgery or psychological trauma (or a combination). Patrick Ussher himself had POTS but recovered by following a limbic system rehabilitation program (originally developed to treat Multiple Chemical Sensitivity) called the Dynamic Neural Retraining System (DNRS). After recovery, he set about mapping the idea of a limbic system impairment onto pre-existing research into POTS and found that it could explain many key findings including: NET protein deficiency (which is responsible for blood vessel constriction problems and resulting elevated heart rate upon standing), low aldosterone and poor sodium retention (which are responsible for low blood volume problems) and mast cell activation problems. This book will simultaneously act as a guide for those interested in using the DNRS as a treatment for POTS and also as a call for further research into the potential efficacy of the DNRS for treating POTS.

Postural Tachycardia Syndrome (Pots)

All That You Need to Know

Author: Fhilcar Faunillan

Publisher: Createspace Independent Publishing Platform

ISBN: 9781534809543


Page: 72

View: 7607

This book entitled "Postural Tachycardia Syndrome (POTS): All That You Need to Know" will surely help readers to discover more about this condition. Each page of this book will guide you through the ABC's of the syndrome and how it can be managed. Through this book, discover the history and conception of Postural Tachycardia Syndrome and how medical practitioners have been dealing with it over the past years. Be educated about POTS in the simplest terms and know who are mostly affected by it. This will help you become more aware of this condition and be of help to those loved ones that may be suffering from it. Here, you will learn about what causes POTS and the common conditions that are associated with the syndrome. You will also be able to understand the classification of POTS and its specific effects on different age groups. Postural Tachycardia Syndrome is one of the most often misdiagnosed conditions right now. So in this book, you will be taught about the symptoms of a person who might be suffering from POTS. Discover how these symptoms vary from each individual and to different age clusters. Moreover, this book will teach you about the triggers of POTS and the basic solutions for the symptoms experienced by POTS patients. Other helpful topics from this book include the criteria that one must fulfill in order to be diagnosed with Postural Tachycardia Syndrome, and the various tests to use in confirming the diagnosis like the Tilt-Table Test and Catecholamine test. As being diagnosed with POTS is life changing to its sufferers, you will also be taught here about the different life adjustments patients could practice in order to continue being functional. This will help you to know how you can contribute to the patients' day to day welfare. This is will be a great help for those diagnosed with POTS or people who have loved ones with POTS. Lastly, this book will also guide you on knowing about POTS medications, their possible side effects, and how to prevent them or at least lessen their blows on patients. This is necessary because medication and treatment for those with POTS are a little bit hard and complicated since it affects each person differently. This will definitely help people who want to help others diagnosed with POTS, people who are looking after someone who have POTS, and most especially POTS patients themselves. Know the basics about this syndrome and be an agent in helping patients who are having a hard time fighting this condition. Remember that it is always good to be ready in case you meet a patient that might need help. Thank you for reading this book and enjoy!

Dysautonomia, POTS Syndrome

Facts and Information

Author: Frederick Earlstein

Publisher: NRB :Publishing

ISBN: 9781941070178


Page: 126

View: 6480

Dysautonomia, POTS Syndrome affects many people. This books aims to provide the information sought out by those people who suffer. Frederick Earlstein has written this medical education guide to provide an understanding of Dysautonomia, POTS Syndrome including POTS and Associated Disorders, signs and symptoms, causes and treatment, living with POTS, research and resources, and medical definitions. Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered! The book is written in an easy to read and understandable style. In a straight forward, no nonsense fashion, Frederick Earlstein covers all aspects of Dysautonomia, POTS Syndrome. The book is full of informative content and answers to your questions - including some you didn't know you had!

Doing Harm

The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick

Author: Maya Dusenbery

Publisher: HarperCollins

ISBN: 0062470817

Category: Health & Fitness

Page: 400

View: 7077

In this shocking, hard-hitting expose in the tradition of Naomi Klein and Barbara Ehrenreich, the editorial director of, reveals how inadequate, inappropriate, and even dangerous treatment threatens women’s lives and well-being. Editor of the award-winning site, Maya Dusenbery brings together scientific and sociological research, interviews with experts within and outside the medical establishment, and personal stories from women across the country to provide the first comprehensive, accessible look at how sexism in medicine harms women today. Dusenbery reveals how conditions that disproportionately affect women, such as autoimmune diseases, chronic pain conditions, and Alzheimer’s disease, are neglected and woefully under-researched. "Contested" diseases, such as fibromyalgia and chronic fatigue syndrome, that are 70 to 80 percent female-dominated are so poorly understood that they have not yet been fully accepted as "real" conditions by the whole of the profession. Meanwhile, despite a wealth of evidence showing the impact of biological difference between the sexes in everything from drug responses to symptoms to risk factors for various diseases—even the symptoms of a heart attack!—medicine continues to take a one-size-fits-all approach: that of a 70 kilogram white man. In addition, women are negatively impacted by the biases and stereotypes that dismiss them as "chronic complainers," leading to long delays—often years long—to get diagnosed. The consequences are catastrophic. Offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its effects, Doing Harm will change the way we look at healthcare for women.